With Grace and Grit - Life with Chronic Illness
In spite of (or maybe because of) the roller-coaster year we’ve had, I’ve learned life-changing lessons from living with chronic illness – and have emerged stronger.
Self-reflection. It’s a good thing, right? And if ever there was plenty of time for wholehearted soul-searching, it was 2020. But damn, this year needs to be over.
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Living with chronic illness isn’t easy. It’s even harder when we fake being well – because there’s a price to pay for doing it.
Do you ever feel like the you’re the great pretender? It’s easier than you’d think – especially if you have a chronic illness that also happens to be invisible.
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Living with a chronic illness can predispose us to negative self-talk. It can be hard to prevent our limitations – real and perceived – from changing how we see and value ourselves.
I don’t know anyone who claims to be immune to the potential ravages of negative self-talk. We all do it – although not necessarily to the same degree. Self-doubt, self-loathing, self-consciousness, self-deprecation – I could go on. But I’m guessing you know exactly what I’m talking about.
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Anger is often a mask for grief. It’s okay to be angry when you’re chronically ill. Once you acknowledge it you can find effective ways to cope so that you can live well.
There are moments – and not just a few – when I recognize that words are the way to the soul. Sometimes, a chain of simple words are tethered together so perfectly that they are extraordinarily profound.
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There are lots of techniques you can try if you want to fall asleep faster. But when the conventional approaches aren’t working, it’s time to give these two unconventional methods a try.
Sleep. A solid night’s sleep. Don’t I wish! Insomnia is an equal-opportunity condition. A quick Google search produces about 71 million results. And while it’s estimated that it effects 30% of the population, knowing that you’re not alone doesn’t make it any easier when you’ve looked at the clock at 1:20 am, 2:40 am and 3:45 am (you get the picture).
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It’s hard to feel productive when you’re too tired to do anything. So when your body demands a break, take the opportunity to boost your mental wellness.
Have you ever felt like your brain wanted to do something but your body wouldn’t cooperate? I have. So. Many. Times. Like many other types of chronic illness, my autoimmune disease is unpredictable. It seems like it’s unpredictability is the only predictable thing about it.
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Joining a support group can help you feel understood and give you a sense of belonging. It’s another strategy for living well when you are chronically ill.
How did you feel when you received your diagnosis? Alone? Confused? Afraid? I know I did. There is almost nothing more emotionally isolating than facing a disease that you have very little (if any) control over. This is true whether it’s a chronic illness that can be managed, or an acute illness that is severe and threatens your life.
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There are two simple strategies for self-care that you can use to reduce anxiety and improve your well-being.
Take care of yourself. How many times have you heard this expression? If you’re chronically ill, I’ll wager that you’ve heard it a lot. But what does it really mean? How do you define self-care?
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